INTRODUCTION AND OBJECTIVES
The International Course Training on strategies to foster solutions of undiagnosed rare disease cases is part of a series of training activities proposed by the EJP RD. EJP RD is a European Commission funded project (grant agreement No 825575, 2019 – 2023) with the goal “to create a comprehensive, sustainable ecosystem allowing a virtuous circle between research, care and medical innovation”.
This International course is part of WP14 of the EJP RD, “Training on Data Management & Quality”; Task 14.3 “Training on strategies to foster solutions of undiagnosed rare disease cases”. WP and Task Leader: Dr. Claudio Carta, ISS.
Course Director: Dr. Domenica Taruscio, ISS.
For the first time, the UDNI Conference will take place in the Southern Hemisphere, hosted in Latin America's dynamic and safe Barra da Tijuca …